I'm sitting in a waiting room at the Huntsman Cancer Hospital in Salt Lake City, UT while D is having a bone scan. He was injected with a dye this morning, then we had to kill three hours, now he's having full-body X-rays to see if his tumor has spread anywhere else in his body. Ewing's Sarcoma is mostly a bone cancer, so if it spreads, typically it will end up in a bone, or the lungs.
While I'm sitting here, playing games on my iPad and doing online banking, a gentleman receives a call on his cell phone. He proceeds to explain to his caller, why he's waiting for his PET scan (a PET scan looks for cancer in other soft tissues and lymph nodes of the body -D had one of those too, a long time ago). He goes on to describe his chemo regimine for the next nine months...
And I rewind five years...memories flood back from the first days of D's pain, fearing the worst, hoping for the best...holding L, knowing she would be my last baby...working through the night while my children slept with D in his hospital room...laying in D's bed with him during my breaks...waiting in the many waiting rooms over the years, looking around and feeling very young...going to church alone...celebrating birthdays in the hospital...Father's Day in the hospital...rubbing his bald head...L tracing where his eyebrows should be and being confused why they weren't there...wondering why his temp always has to spike at 2am...
Then now...D loves his head shaved (so do I). He's gotten back a lot of muscle...he tires easily...he has a new liver disease...he is now insulin dependent...he sunburns freakishly easily...he has difficulty remembering things (more so than just Man Brain)...the kids love laying with him, watching movies
With the recent developments, I've wondered, Can we do this again? Well, I'm sure we can, anything is do-able...you just DO it...you wake up every day, breathe in and out, and before you know it, 5 years have passed.
I was lucky. I learned from my cancer patients, before D ever was diagnosed, what they would have done differently, looking back. So, I guess, we had a head start...Now it looks like we'll get a second chance, too...sigh...Ok, let's get going then.
3 comments:
Wow Rachel. Wow... It's a good thing you're a strong, stubborn and spunky woman. If anyone can do this, it's you and your family.
I certainly hope everything is clean and/or benign. You and your family have been in my thoughts and prayers.
Much love
M
Love you guys!
Wow. This was so powerful Rachel. I'm sorry to hear about D having to go through all of this (again). You'll be in my prayers. <3
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